I was sent for an uptake scan. Once the results came back I was told I needed RAI, or my other option was to have a total thyroidectomy, I didn’t want any more surgeries because I had just had a complete hysterectomy. So with that, I chose RAI. I thought I would be given medicine to regulate my thyroid hormone, since my endo explained that this was the process. After going to the doctor every 4-6 weeks for (what seemed like forever) I still had not received any medication. I was told my levels were not low enough, I never saw the results of all this blood work.
At some point in August 2012, while visiting with a friend, as I got up to go home I felt really tired. I walked around the corner of the porch and I passed out and hit my head. When I came to, my friends asked if I was okay. I thought I was, so I started to leave again and to my surprise I passed out again and hit my head. At this point my boyfriend, at the time, took me to the ER where they did blood work, which had to be low and was given 3 days off work and another follow up with my Endo, this finally got him to give me medication.
My doctor at the time moved and I went searching for a new doctor. I found one and I was hopeful. That was until I started saying I was having pain all over especially in my joints. He acted like I never said anything about it.
When I found Dr. Chandler who is now my PCP. He tested me for lupus, found out my thyroid levels were off the chart and stated he had not seen levels as high as mine, at which point my dose of levothyroxine was raised. I went back in 6 weeks and he found that I needed vitamin D, so I went back in 4 weeks, had more blood work found out I needed a multivitamin and a b complex. Everything was going good and had not had my blood drawn since September 2014. I went to my normal appointment a few weeks ago had blood drawn I was given a call and told my T4 was low and my TSH was high so I am now up to 200mcg a day. I will be going to pick up my copy of my results to review how high my levels were.