I will tell you all the short version of my story. I got stomach issues on Valentines day 2012 when I was at John Therry Catholic High School and in the first term of year 10. I first had some kind of stomach virus and then I got a little bit of stomach issues and this went on for a very long time and just kept getting worse. So I was at the hospital, doctors, having tests and trying to go to school but I could only last an hour or sometimes more because of how severe the pain was. And then in term 2, 2012, mum said that she would find something that was kind of like home schooling but she didn't have to find all the work. So she found Sydney Distance Education High School and I got accepted so in term 2 of year 10, I started Sydney Distance Education High School. I just finished my HSC year at Sydney Distance Education High School. Some of my stomach issues are Irratiable bowel syndrome, Chronic Gastrist, neuropathic pain (as known as, nerve pain), something wrong with my pancreas and liver (still having tests) and more. I’ve had my appendix out, a follopean tube cyst (that was about to burst that day) and my gallbladder out.
When I first had a ct scan for my severe stomach issues and had the Iv contrast I had an anaphylaxis to the Iv contrast and ended up in ICU. In ICU my left arm got swollen from when I had to have the cannula in and had to go for a ultrasound just to make sure everything was ok. So, I went to have it and came back and the doctor said you have Graves' disease (they started from the neck and graves is in my family) and then I had the tests and they all confirmed it. I was having some symptoms, but nothing bad. I tried to get off my medication, but my I went back into remission, so now I've had graves disease for 3 years and the doctor is now saying I might have to have surgery to get it removed which I will defiantly have if needed.
Though as of the 9th of September 2014 I was officially diagnosed with Cyclic Vomiting Syndrome. Cyclic vomiting syndrome (CVS) is a rare disorder characterized by recurrent, similar episodes of severe nausea and vomiting. An episode may last for a few hours to several days and then is followed by a period of time during which affected individuals are free of severe nausea and vomiting. This alternating pattern of disease and disease-free periods distinguishes cyclic vomiting syndrome from other similar disorders. My symptoms I've got because of (CVS) is vomiting/dry reaching, loss of appetite, fever, dizziness and more. Cyclic vomiting syndrome affects children more often than adults. In adults, episodes occur less frequently, but may last longer. The exact cause of cyclic vomiting syndrome is unknown.
My irritable bowel syndrome, chronic gastritis, neuropathic pain (as known as, nerve pain) and my cyclic vomiting syndrome has affected my life in several ways since I got all my diagnosis these past three years.
- I had to enroll into Sydney distance education High School because I couldn’t attend face to face school on a regular basis because of my stomach issues.
- My chronic gastritis has prevented me from eating properly. When I try to eat normal food I vomit and when I smell food I dry reach. I am on these special fruit supplement drinks that are like normal food. I can’t have coke, orange juice, apple juice, milk and more drinks because of this stomach issue.
- I cannot walk, sit, stand; I cannot take my pants on and off (it hurts my stomach issues more) , etc, because of the severe pain my stomach issues are giving me.
- I only go out when I need to go to have tests, go to the hospital, go to the doctors, etc.
- I have lost a lot of friendships since I got stomach issues, but I’ve also made some unbelievable amazing new friends.
- I have to sleep on chair, because sleeping in a bed hurts my stomach more.
- I had many favourite things I had to give up. I’ve had to give up acting for the stage, singing lessons, dancing, horse riding and more.
A typical day for me is getting help from my mum so I can get off the chair I have to slept on, getting help from my siblings or mum to help me up stairs and to put my pants on, I then to my hair and makeup, then mum and I drop my siblings off, then mum drives to the doctor’s, then after that I have blood tests, then a while after that I go have ultrasounds/CT scans/X-rays to see if anything is different, then back home to do my diploma of early childhood and care work, then we get the siblings, then hours later it’s time to get help to go upstairs to get ready for bed and then it’s time to try and go to sleep, then I do it again the next day!
I have contistant pain 24/7. On the pain level scale my pain on a good day is a 7 or 8 (depends) and on bad days it’s a 10.
I’m not actually sure if my stomach issues will get better as I get older. My doctors think I will have stomach issues for the rest of my life, but I will not let that put me down, I will live life to the fullest with my stomach issues.
I have a Facebook called Tayarra's Story that tells you about my life with stomach issues. Also if you have stomach issues and feel like you are alone I will be here to support you and this page is for the people who have signs of stomach issues that won't go to the doctors they can see it could be anything and just go to the doctors and more. The page also talks about my other health issues. The link is.....https://www.facebook.com/pages/Tayarras-Story/142265612799685